Walk with us on October 14th!

Logan really loves the Jdrf runs but wants to celebrate his 10 year diaversary this year with all of our friends walking together at the Jdrf walk on October 14th. This is the first time in many years that we are forming a team and we really hope that you will join us. Just go to the link below and click on join this team. If you want to forward it to your friends and family for donations you can but you don’t have to. If you fund raise $75 as a walker you get a free ticket to Six Flags to go after the walk. Either way it’s awesome weather, you get a free lunch, and a chance to do something to make a difference for Logan. Join us!!!

 

http://www2.jdrf.org/site/TR?fr_id=7438&pg=team&team_id=259245

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Fast Dexcom insertion for a kid, by a kid

Logan met Thomas a couple of times earlier this year. His parents ordered the Dexcom but the first insertion was scary for him. I messaged with them and offered to have EBK help. Logan talked to him to try to ease his fears about it and offered to insert the next one for him to show his parents the “good” way to do it. We met up quickly last night after work and got it done. Shout out to @hkdairybarn for acknowledging the bravery of both boys with ice cream cones! We have come a long way in the 6 years since we started using the @dexcom CGM and we are grateful for it!

 

#tsliminthewild at the Disney races!

Some great pics from Logan’s races on the Tandem Diabetes blog this month! Logan really loved having his blood sugar numbers on his Tslim X2 pump this year via his Dexcom CGM, it was much easier than last year where he wound up stopping several times to test during the 5K. Such a great feature, the tools we have at our disposal just keep getting better!
#stillwaitingfortheplgspump

https://www.tandemdiabetes.com/blog/post/featured-users/2018/01/30/logan-and-his-tsliminthewild-raised-over-$24-000-for-children-with-diabetes-and-jdrf

 

Logan and his #tsliminthewild raised over $24,000 for Children with Diabetes and JDRF

Jan 29, 2018

This year in July, Logan’s 10th anniversary of this diagnosis with type 1 diabetes will happen during the annualChildren with Diabetes Friends for Life Orlando Conference in Florida.

Logan has attended the conference since 2015 and has worked hard to give back ever since. In 2016, Logan’s fundraising supported a “Mickey Bar” afternoon where all the event participants are treated to chocolate covered ice cream bars shaped like Mickey Mouse. The last two years he delivered speeches about why it’s important to support Children with Diabetes, and how to win fundraising contests along the way. Logan and his family are often contacted about guidance on fundraising strategies and his contributions earned him the “Unexpected Hero” award which he accepted at the 2017 Friends For Life Banquet.

As a special challenge for this milestone year along his journey with diabetes, Logan chose to run at the annual Walt Disney World Marathon Weekend in support non-profits that have supported him in his journey with diabetes. Logan ran the 10K for Children with Diabetes and the 5K to fundraise for JDRF. He raised over $24,000 ($18000 for CWD and $6000 for JDRF) and was the youngest runner on both teams.

In these races he ran alongside many of his peers with diabetes, sharing their diabetes management strategies along the way.

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Here is Logan lined up at the start of the 10K. 

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Logan took a quick break for some carbohydrate during the 10K run with fellow runner with type 1 diabetes, Stella Hogan, as Vice President of Education and Programs at Children with Diabetes Laura Billetdeaux smiles from behind.

“He really appreciated having t:slim X2 Pump now integrated with Dexcom during both the 5K and 10K runs so he didn’t have to test or bring out his phone to check his status,” said Logan’s mom, Samantha.

Logan received registration for the 2018 Friends For Life Orlando conference as a Christmas gift. Since December, he met a personal goal to fundraise for a giant party at the conference to celebrate his diaversary. There, he will bring together his friends with diabetes who live all around the country.

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Logan with his JDRF teammates and fellow Tandem pumpers Emma Kleck and Lauren Dahlin after the 10k that day. Emma did the half-marathon on Saturday, and Lauren did the full marathon Sunday. 

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Logan at the finish line for the 5K. 

We love seeing our customers giving back to this community and nothing motivates us more than seeing our pumpers push their limits for a good cause. We are so proud of Logan!

What’s your journey with T1D like? Share pictures and stories with us via community@tandemdiabetes.com. We’d love to hear and share.

Finish Line….

Thanks to everyone who supported Logan’s fundraising! After completing the 5k on Thursday for his JDRF fundraising, he completed the 10k on Friday with 3 of his CWD buddies. That evening he accepted a fundraising award at a JDRF reception for his 5k fundraising, he was in the top 4 of the 105 Runner’s participating! We are so proud of him!

Extra special thanks to the very special people that took care of him on the course during both races, because Type 1 never stops! We are grateful!!

Time for rest and recovery until the next adventure! Highly recommend joining a fundraising team for the Disney races if your kid likes to run. They meet such amazing people and it’s a one of a kind experience! He also had time to make some memories with some of his diabetes tribe! While we are sad it’s over, we will definitely stick to one race at a time in future years!

 

Product Review (not sponsored)

Product alert-

If you have insulin in your fridge, you need a Medangel in your life. It just saved EBK’s insulin supply by alerting us to an issue where the fridge needed to be restarted.

How it works-you buy it, load the app, put the sensor in your fridge. When you are near the sensor it updates the app. If anything occurred during the time you were away from the sensor it will give you an alert. Priceless.

Room for improvement-I’d like the app to alert when the sensor isn’t near my phone but that’s in the works. Also you need to replace the unit every year due to battery but you need to with the Tile and so many other items it’s not really an issue for me.

Seriously worth every penny, the cost is less than a vial of insulin!

https://us.medangel.co/

We had a great weekend, first a pod painting party on Friday, then EBK’s first time ever ice skating on Saturday.
 
Guess what? If you fall on your butt enough times, your insulin pump site will die. Pretty sure ice skating at Bryant Park with Sierra was worth the site change in the (somewhat gross) first aid room but his numbers spiked too high from the bad pump site and took a while to be back in range. Next time we will have his pump site on a different part of his body for sure!
 
Day 4 without the first trial pump and we are still missing the automatic suspension feature which helped him avoid some low blood sugars. He doesn’t always feel his lows in time, especially when he’s busy having fun with his friends. That’s when this was the most valuable to him. For me of course it was the night time, since I was back to being crabby yesterday from having to wake up on Saturday night (luckily not last night as I get even crabbier two days in a row!).
 
I am writing a letter to the FDA and Tandem to ask them if they can give it back to us when the trial is over. I could always make some noise but figured it never hurts to ask nicely first. #givemebackmypump

Goodbye PLGS

You know those days where you want to stay positive and motivated but you are focused on how tomorrow will be a challenge…that’s today for us. Tomorrow we give back the Tandem Predictive Low Glucose Suspend pump we have been using for the past few weeks for a clinical trial. Logan’s already in tears over it and I must say I am too. While it’s not perfect, it’s more perfect for us than anything else out there on the market and I find it incredibly sad that we can’t have access to it until more people go through the trial and it has FDA approval. It works, so slap a few warning stickers on it and let my kid have access to it now so he can feel safer at school.

But I did sign a piece of paper saying I’d return it and so did he, so we will. Next we will have 3 weeks on a normal Tslim pump, like ours, which we will return the day we start the holiday break. Not looking forward to going back to normal but we will use our new knowledge on where L dipped the most to adjust his basal rates during the school day and hopefully help him maintain his “ready to learn” mode.

We hope that this technology comes to market by next summer for all his swimming and activities, also for all of you that need to make a pump choice. While this technology was not perfect, it definitely reduced the number of low blood sugar episodes and kept him in a safe range at night, which was our priority. Now it will be back to me being his pancreas at night again, a job I treasure and dread simultaneously.

One thing we won’t miss is changing L’s sensor every week. It can be 9 years or 100 and he will love the data/alarms but doesn’t love the insertion. Typically we let it go 2 weeks and then change it but for the study we have to change it every 7 days like clockwork. Which of course ran out for us at an event Tuesday night so we did it as soon as we got home. His Dexcom continuous glucose monitor is only one tool in our arsenal but it’s the most important one to us!

Pump Trial Update

It feels like just yesterday that we picked up the Tslim with threshold suspend for L’s pump trial but we will be returning it on 12/1. I can’t begin to express how amazing this technology is. It’s not a cure and it’s not perfect but it’s definitely a game changer. Imagine not having to wake up at night for a low blood sugar alert? Imagine him watching a movie with friends and not having to interrupt for him to throw smarties in his mouth? This and more is achieved with this new (new to Tslim) technology! A great example of it in action is after pasta and milk sometimes he goes low, then spikes. We improved on our technique with sugar surfing recently but with almost no effort this pump maintained a flat line for us. Keep in mind we had to give him the right amount of insulin for this meal, which we did, but this pump avoids a lot of the fluctuations we usually see.

What needs improvement–it doesn’t always catch the drops fast enough when he’s on the move. This applies during gym or a period of high activity. When it doesn’t, he has to make the decision to treat, or wait and see if the pump will even him out enough. He’s 10 and can’t always make the right decisions when he’s low so we hope that the sensor will catch those faster in the next generation.

While we have to return the pump, what we don’t have to return is the meter they gave us with it, the Accu-chek guide. Hands down, this is the best meter we have used in years. We are switching to these strips with our next shipment and will pay out of pocket if our formulary doesn’t cover them next year. It’s simple to use, has a light by the strip area, the vial doesn’t let strips fall out and it’s super accurate. Logan loves it!

We will summarize our experience after the trial is over in January but Tslim users should get excited about this update that will hopefully be released in mid 2018!